'this was my lowest-energy day so far this week'
Should this extract from
last Thursday's blog post have raised a red flag? Probably, but on Friday I rather optimistically went to watch my nine-year old on the last day of the sailing course that he's been doing at
Edgbaston Water Sports. He'd been telling me all week about how much he'd been enjoying it and, well, it seemed like a good idea. It was not until we were half-way home that I realised that I was in trouble.
I should say something here about CFS here, and this is just my personal experience as I know that different sufferers face a wide range of symptoms at varying levels of severity. For me, the first indication that I'm overdoing things is not a feeling of tiredness. I feel tired every minute of every day and any physical activity at all exhausts me very quickly. This means that the measure of available energy that works so well in a healthy person, tiredness, is for me a very unreliable indicator. This means that it is very easy for me to persist with a tiring activity, particularly one that doesn't feel tiring, say for example sitting and looking at boats in a reservoir, for too long. The first I know that there is any problem, is that I become irritable and short tempered. Unfortunately this symptom is not an early warning system, once I get to this point I know that my energy budget for the day has been over-spent. Unless at this point I can lie down in a dark, quiet room and rest for the remainder of the day, then there will be a 'hangover' of exhaustion which will further limit my energy for one, two or even three days.
Sarah was driving us up Highgate Middleway on the way back from the reservoir when I commented on her lane placement, and snapped at her reply. I sat in a sulk for a couple of minutes before it sunk in that I was in an 'energy crash' situation and that there was no escape. I closed my eyes and stopped talking. It would be at least twenty minutes until we got home, and I would just have to sit there and wait. What is tiring about sitting in a car? Sitting down tires me, the engine and road noise tire me and the movement tires me. It was about half an hour before we were home and I could retreat to bed. Again, the feeling of complete exhaustion was too familiar to gauge my energy level by and it was my emotional state that gave it away, a kind of undercurrent of negative feelings, raising up in turn like evil salesman retailing negative thought processes. Why not indulge yourself in misery? Have you considered utter despair? How about a good, seething bout of rage? Once lying down in the quiet dark, my body was now able to rest, and the challenge was for the brain to remain aloof, to allow those emotions to run themselves out, without being swept along. It took a couple of hours to completely pass through this crisis phase and the remainder of the day had to be given over to rest.

So, fascinating insight into the life of a CFS sufferer, or laboured excuse for not posting on Friday? I will attempt, in any case, to make up for failing to tell you about Friday's breakfast by describing it here. Baked anchovy on egg on mushroom, a pretty good idea I thought and, who knows, maybe it could be delicious. Maybe the mushroom was just past it's best. Maybe if the egg had stayed on top instead of running off over the baking tray. All I know is, I didn't enjoy it one little bit.
Dinner was much better; Avocado topped with Lime juice, toasted seeds and Parsley. The Avocado is scored with a grid pattern so that the lime juice, which is added next, can seep into the flesh. The Pumpkin seeds are heated in a frying pan for one minute, before adding the sunflower seeds and heating for a further minute. The Parsley is thrown in for a few seconds, and then the contents of the pan are used to top the avocado. Lovely. Had the same again today!